Wednesday, January 4, 2012

Lou's Story: Why I'm Doing This

There are numerous web pages devoted to kidney/renal reflux or vesicouretal reflux. I am not going to reference ANY of them here... This is my baby's story. She is almost 6 months and has been through the wringer. We are currently sitting in the hospital, and she's asleep. So, this may be just an intro paragraph.

I will be recounting her signs and symptoms, what the 10 or so different doctors have said through her three hospital says, and our experiences. This may be your story, too. If you've lived through this, you know it can be scary. Or you might be thinking, well heck, it's not freaking cancer! I don't know about you--the reader--as a parent, but her pain is my pain. Her defect is MY defect. I watch and can do so little. I hug but I cannot fix.

This is not a medical document. Do not use this to diagnose. I want to tell it because I want it remembered as it happened. And to let you know you are not alone. And so that you know a fever is not always JUST a fever. Always follow your gut as a parent, as long as your gut tells you not to ignore signs of illness. As long as your gut doesn't abhor doctor visits. I no longer care about the haughty voices of doctors who look at you and talk to you like you may be wasting their time. My babies are more important than that.

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